When your child comes to Seattle Cancer Care Alliance (SCCA) for a transplant, he or she will be a patient at a research center. When you choose to have your child treated at SCCA, your child benefits from the knowledge gained from clinical studies in which former patients participated. In the same way, the studies your child participates in will benefit other children in the future.
Some of the doctors, nurses, and support staff who care for your child are in training, learning bone marrow and stem cell transplant therapy. They always work under the close supervision of senior, experienced staff members.
All of our transplant patients, both adults and children, are treated in clinical studies. These studies, also called clinical trials, seek to improve results for transplant patients, including improved disease-free survival and better quality of life during and after their transplants. Most of our young patients will take part in several clinical studies.
Here at SCCA, we have even more transplant options for our highest risk pediatric patients and we are at the forefront in transplantation for children with non-malignant blood diseases and other genetic disorders. “Much of this progress can be attributed to good clinical research,” says K. Scott Baker, MD, MS, director of the Pediatric Blood and Marrow Transplant Program at SCCA. “Only with well designed studies and the continued participation of patients and families can we learn how to make transplantation safer and more effective.”
Basics About Studies
Patient confidentiality is always protected in clinical studies. Your child will not be identified by name or initials in any research.
You will be asked to sign a written consent form for each study in which your child participates. Your signature means that the study has been explained to you, you understand the risks, you have had a chance to ask questions, and you freely agree to your child’s participation.
We will continue to follow your child after his or her transplant. Our Long-Term Follow-Up program allows us to help individual patients with the health issues they may have post-transplant and also to collect data that is useful to our research goal of improving transplant therapy.
Questions About Research
Feel free to ask your child’s doctor or nurse if you have any questions or concerns about your child’s participation in clinical studies.
Read More About Studies
To learn more about clinical studies, why and how they’re done, and what your child’s experience may be like, read the Patient Guide to Clinical Studies, especially the section on children and studies.