The Fred Hutchinson Long-Term Follow-up Program at Seattle Cancer Care Alliance (SCCA) provides life-long monitoring and care for people who have had a bone marrow or stem cell transplant.
Our doctors will work in partnership with you and your local doctors to resolve medical problems. We also gather information from survivors to better prevent and treat long-term effects of transplantation.
Contact us if you have transplant-related questions that can't be answered by your personal doctor or if you and your doctor need a consultation with Long-Term Follow-up (LTFU). Learn more about our services.
- Recommendations for staying healthy after transplant
- Information on coping with after effects of transplantation
After Effects of Transplantation
These are the most requested topics about coping with long-term effects of transplantation. These articles are on the website of the Fred Hutchinson Cancer Research Center, a partner of Seattle Cancer Care Alliance.
- Chronic GVHD: Signs to Watch For
- Treating Graft-vs-Host Disease (GVHD)
- Understanding Graft-vs-Host Disease
- Post-Transplant Lung Issues
- Muscle Cramps and Bone Problems
- Dental Issues Following a Transplant
- Peripheral Neuropathy
For a full list of topics, see LTFU FAQs.
LTFU Contact Information
If you have transplant-related questions that can't be answered by your local doctor or if you and your doctor have determined that consultation from Fred Hutchinson Long-Term Follow-up (LTFU) is needed, we are here to help. We are part of Seattle Cancer Care Alliance (SCCA).
To reach us Monday through Friday, 8 a.m. - 4 p.m. (Pacific Time), call (206) 667-4415. A voicemail system is available after hours, but callers with emergencies after hours should call (206) 606-7600 and ask to speak to the charge nurse.
Calls are assigned priority according to medical urgency and the order in which they are received. In many cases, LTFU may need to contact your doctor for further information or to coordinate necessary care. Complex problems not requiring an immediate response may be discussed at an LTFU clinical care conference held twice a week. In general, most calls receive a response within 24 hours. But please be aware that the response time depends on the volume and nature of the calls received. At times there may be a delay in responding to less urgent problems.
|Mailing Address:||Long-Term Follow-Up Program, LF-240
Fred Hutchinson Cancer Research Center
PO Box 19024
Seattle, WA 98109-1024
Long-Term Follow-Up Services
The Fred Hutchinson Long-Term Follow-Up (LTFU) Program at Seattle Cancer Care Alliance (SCCA) provides clinical care and conducts research.
After you return home, LTFU nurses and doctors are available for telephone consultations with your local doctor, as well as discussions with you and your family members about post-transplant concerns. Your phone inquiry will be handled by a nurse with expertise in post-transplantation care, working with a doctor who regularly reviews transplant cases.
For some types of problems, you may need to return to the LTFU Clinic at SCCA at south Lake Union for specialized care, such as treatment for graft-versus-host disease (GVHD). If you have received an allogeneic (donor) transplant, you are asked to return at your one-year transplant anniversary for special testing to review your progress. Meet our staff.
We also have information to guide physicians caring for transplant recipients after their return home.
After returning home following a transplant, you become part of our Long-Term Follow-Up Research Program. This is a life-long program of monitoring that continues for as long as you want to participate.
You and your doctors will be asked to complete a questionnaire at six months, one year, and each year after your transplant. Collecting data from you and your doctors, even decades after treatment, allows LTFU researchers to learn about the long-term effects of transplantation. This helps us determine the best course of preventive care or treatment for current as well as future patients. We encourage you—even if you are not having post-transplant problems--to participate so our research is more accurate and informative.
You also may be interested in learning about or participating in SCCA clinical studies to improve management of the after effects of cancer treatment and lower risk of future cancers.
A meeting for transplant survivors and caregivers is held weekly for conversation, camaraderie, and support while getting through the rigors of post-transplant issues and complications. You can join in person or by conference call. Survivors from two months to more than 10 years enjoy this group. Feel free to bring your lunch.
When: Every Thursday, 11:30 a.m. - 12:30 p.m.
Where: Seattle Cancer Care Alliance, 825 Eastlake Ave. E., Sixth Floor, Room 23
To participate in the discussion via conference call, dial (641)715-3300.
At the prompt enter the PIN number 882679 followed by the # symbol.
You will be charged a long-distance fee. If you need financial help, we can provide you with a phone card.
Questions? Contact Long-Term Follow-Up at (206) 667-4415