Below is a list of online resources you may find helpful for learning about head and neck cancers and the various treatments and support networks available.
The American Society of Clinical Oncology
ASCO is a nonprofit organization, founded in 1964, with overarching goals of improving cancer care and prevention and ensuring that all patients with cancer receive care of the highest quality. Read about head and neck cancers on ASCO’s patient website Cancer.Net.
Association of Cancer Online Resources
ACOR has a number of online lists that provide support and information to people living with cancer. The head and neck cancers e-mail support group has hundreds of members. Sign up by visiting the ACOR website or emailing email@example.com. In the message area of your email, type “subscribe head and neck” followed by your first and last name.
The Hutch is one of the three Seattle Cancer Care Alliance (SCCA) founding organizations. It has an international reputation for its leading-edge cancer research. Read about oral cancer on the Hutch website.
International Association of Laryngectomees
IAL is a nonprofit organization composed of approximately 250 member clubs and recognized regional organizations. These clubs are generally known as “Lost Chord” or “New Voice” clubs. The purpose of the IAL is to assist these local clubs in their efforts towards the total rehabilitation of people who have had their larynx removed.
National Coalition for Cancer Survivorship
NCCS’s mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life.
Oral Cancer Foundation
The Oral Cancer Foundation is a nonprofit organization dedicated to prevention, education, research, advocacy, and support. Its website includes a patient/survivor forum and a comprehensive resource list.
Solid Tumor Translational Research (STTR)
The STTR group is comprised of investigators from the Hutch, UW Medicine, Seattle Children’s, and SCCA. The goals of the program are to enhance the understanding of cancer biology and therapeutic responses and to identify personalized treatments that improve patient outcomes. Read more about the STTR head and neck cancer research program.
Support for People with Oral and Head and Neck Cancer
SPOHNC was founded in 1991 by an oral cancer survivor to address the broad emotional, physical, and humanistic needs of people with oral cancers and other head and neck cancers. SPOHNC is recruiting volunteers for its National Survivor Volunteer Network. For more information, call (516) 759-5333, or email firstname.lastname@example.org.