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Multiple Myeloma Patient Panel

Multiple Myeloma Patient Panel

In this video from our ""Living Well With Multiple Myeloma"" event held at SCCA in November 2011, multiple myeloma patients discuss their diagnosis, treatment, and living well with the disease. Moderator Andrew Schorr asks panelists about the process of dealing with the emotional impact of the diagnosis and communicating with loved ones and doctors. Panelists provide recommendations, such as assembling a team of doctors beyond your oncologist, to find additional support. They share their perspectives on participating in clinical trials.

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Multiple Myeloma Patient Jamie Parsons

In this video from our ""Living Well With Multiple Myeloma"" event held at SCCA in November 2011, multiple myeloma patient Jamie Parsons and his wife Mary Beth Parsons discuss his diagnosis and participation in a clinical trial. They share their reaction to the diagnosis and describe how a support emerges from others who have dealt with myeloma. Mr. Parsons feels blessed to be a part of the first phase of a 16-month clinical trial. He did not experience side effects, and after more than 3 years, he is pleased with results of his monthly tests. He and Mary Beth are full of hope feel that myeloma is a disease to be managed rather than succumbed to.

Understanding a Multiple Myeloma Diagnosis

In this video from our ""Living Well With Multiple Myeloma"" event held at SCCA in November 2011, Drs. William Bensinger and Dr. Noopur Raje discuss understanding the diagnosis of multiple myeloma with Andrew Schorr from Patient Power. Dr. Bensinger explains MGUS (monoclonal gammopathy of undetermined significance) and tells about the risk of progression to active myeloma, which is about 1% a year. He also discusses smoldering multiple myeloma, or asymptomatic myeloma. People with this form of the disease have a higher percentage of plasma cells in their blood and bone marrow, and a higher level of M protein in their blood, but they do not have bone disease, kidney disease and are not anemic. Learn more about their risk of progression to active myeloma.

Treating Multiple Myeloma with Immunotherapy

Is there any research about treating myeloma with immunotherapy? In this video from our ""Living Well With Multiple Myeloma"" event held at SCCA in November 2011, Dr. William Bensinger of SCCA discusses the eradication of chronic lymphocytic leukemia with adoptive T cell therapy. The effects of this treatment against multiple myeloma are currently being studied. Dr. Noopur Raje describes how adoptive t-cell therapy increases T cells and NK (natural killer) cells over time, which fight tumor cells. It ""wakes up"" your immune system and teaches it to fight against myeloma.

Treating Multiple Myeloma with Bisphosphonates

In this video from our ""Living Well With Multiple Myeloma"" event held at SCCA in November 2011, Dr. Noopur Raje discusses treating myeloma with bisphosphonates with Andrew Schorr from Patient Power. Dr. Noopur Raje advocates the use of bisphosphonates in treating symptomatic myeloma, and explains how they work on the accessory cells which surround myeloma cells. She discusses the side effects related to the toxicities of bisphosphonates such as osteonecrosis of the jaw (ONJ). Current guidelines suggest bisphosphonates treatment for up to two years. Dr. Raje will be releasing data from a recent study supporting reducing the frequency of bisphosphonates treatments to every three months.