Research Program

How the Long-Term Follow-Up Research Program Works

Your care is based on everything we’ve learned by treating and researching diseases, and following the progress of our patients for many years. To keep improving care, we ask you to stay in touch with us after your transplant. This helps our newest transplant patients get the best possible care. It also helps us learn how to provide more effective long-term follow-up, which may benefit you directly.

What we track
We track when our last contact with you took place and where to contact you again in the future. Once a year we send you a health questionnaire to see how you are doing.

The questionnaire asks about all aspects of your health. For instance, it asks about a wide range of possible effects in your body from the transplant or transplant-related treatment. It also asks about issues related to the quality of your life, such as whether you have had any difficulties with your health insurance or any cognitive changes that may relate to your transplant. We hope this information will benefit you and others in the future.

What we do with the data
Our researchers review and analyze your responses to identify problems and help us design new transplants and other treatments associated with fewer complications. With your permission, we may contact you or your doctor if we notice anything in your answers that suggests a treatment change may help you.

March 2006