Overview
Thalassemia is a problem with red blood cells that is passed down from parents to children (genetic). It can cause anemia — low levels of red blood cells. Red blood cells contain a protein called hemoglobin that carries oxygen around your child’s body, dropping it off to cells that need it. The most severe form of this condition is called Cooley anemia, also known as thalassemia major. Thalassemia in children and teens is not very common, so community doctors usually have limited knowledge of the disease. This is why almost all children with thalassemia in the United States receive treatment at one of the children’s cancer centers that make up the Children’s Oncology Group. Children diagnosed with thalassemia are treated at SCCA's parent organization, Seattle Children's, a member of COG.
Children's blood disorders program brings together experts from more than 20 subspecialties to provide diagnostic services and treatments, including the very latest options. The team of pediatric hematologists, nurse practitioners, physician assistants, nurses, child life specialists, and chaplains partner with you to provide expert, family-centered care and compassionate support. We help you understand your child's health and treatment options because you, your child, and your family are an important part of the care team.
Because Children's doctors take part in national and international research studies, and often lead them, Children's can offer new treatment options that many other hospitals cannot give their patients.
Read more about Thalessemia on the Seattle Children's web site.
To make an appointment, call Seattle Children's at (206) 987-2106.
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