Web Resources

Useful resources for SDS include:

• U.S. National Library of Medicine: http://ghr.nlm.nih.gov/condition=shwachmandiamondsyndrome
   
• Shwachman Diamond America: http://www.shwachmandiamondamerica.org/
   
• Shwachman-Diamond Syndrome Foundation: http://www.shwachman-diamond.org/
   
• Shwachman-Diamond Syndrome Registry: (206) 667-6965 or (866) 792-5876;  malvendi@fhcrc.org