Severe Combined Immune Deficiency (SCID)

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Web Resources

Below is a list of online resources you may find helpful for learning about Severe Combined Immune Deficiency (SCID) and the various treatments and support networks available.

Immune Deficiency Foundation
(800) 296-4433
www.primaryimmune.org; idf@primaryimmune.org
40 W. Chesapeake Avenue, Suite 308, Towson, MD 21204

IDF provides accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease. Governed by a Board of Trustees - and supported by a Medical Advisory Committee comprised of some of the world's leading clinical immunologists, as well as hundreds of grassroots volunteers and a compassionate, professional staff - IDF has provided individuals and their families with vital knowledge and made tremendous strides.

Jeffrey Modell Foundation
Hotline: (866) INFO-4-PI
http://www.info4pi.org/

Vicki & Fred Modell established the Jeffrey Modell Foundation, a 501(c)3 nonprofit organization, in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of Primary Immunodeficiency - a genetic condition that is chronic, serious and often fatal. JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and ultimately, cures through research, physician education, public awareness, advocacy, patient support and newborn screening.
 

Seattle Children’s Research Institute
For information about immune deficiency diseases and research underway to treat and/or cure them.