Sarcobase

Sarcobase is a unique tumor registry for sarcoma patients who have been treated at Seattle Cancer Care Alliance (SCCA) or its parent organizations, Seattle Children's  and UW Medical Center.

Dr. Ernest Conrad, medical oncologist at UW Medical Center and director of the Sarcoma Service, started Sarcobase in 2000, and more than 2,000 patients are now listed in Sarcobase.

Sarcoma patients who enroll in Sarcobase can be tracked for follow-up and also for clinical research. "It's the only reliable way we have to track sarcoma patients by a specific diagnosis," says Dr. Conrad.

Patients' data and their privacy are protected as required by national regulations of the Health Insurance Portability and Accountability Act (HIPAA) and IRB (internal review board) approval.

The data collected in Sarcobase will benefit future sarcoma patients, making it a valuable tool for patient education. Researchers are using this information to learn more about sarcomas, which are rare cancers of the bone and connective tissues.

Sarcobase addresses the need for more research on this rare group of diseases by providing important information on a large number of sarcoma patients, making it a valuable resource for understanding the disease.