Neuroblastoma

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Resources

Having a child with cancer means having conversations about the disease and its treatment—with your child, your child’s health-care team, and friends and family. Our staff has many years experience helping families with these conversations. If you would like some guidance, you can talk with our social workers and child life specialists.

For more information about cancer, treatment and support for children and families, here are some links to cancer-related organizations:

Neuroblastoma Resources

Children’s Neuroblastoma Cancer Foundation
(866) 671-2623 (toll free)
This non-profit organization’s mission is to support the needs of children with neuroblastoma and their families through education, support, advocacy, and research.

The Neuroblastoma Children’s Cancer Society
(800) 532-5162, (847) 605-0705
The society is an advocate for the children who suffer from neuroblastoma and is dedicated to serving as a support center for their families. It is comprised of volunteers whose main focus is raising money for research and raising national awareness.

The Neuroblastoma Society
This charity works to raise funds for British research, and its web site provides a downloadable booklet for parents, a newsletter, and other helpful information.

NANT (Novel Advances in Neuroblastoma Therapy) Consortium
(323) 669-5687
Participating NANT institutions work together on clinical trials to develop new therapies to treat neuroblastoma. The NANT Web site provides information about the disease, clinical trials in general, and current NANT clinical trials.

Side-by-Side
(206) 524-7300
Side-by-Side is an outreach ministry of Seattle’s University Presbyterian Church designed to support families who have a child with a critical illness. Services include a family support program and Camp Side-by-Side.

American Cancer Society
(800) ACS-2345 (800-227-2345), provides patient services, education, rehabilitation and education, and supports research to help fight cancer. There are branches of ACS throughout the country, including more than 3,400 local offices.

National Cancer Institute 
The Federal Government's principal agency for cancer research and training.

Children's Cancer Association 
Offering programs, information, advocacy and support to enrich quality of life for seriously ill children and their families.

CureSearch.org 
The combined efforts of the National Childhood Cancer Foundation and the Children's Oncology Group, providing information on the care of children with cancer.

Brittany Lambert Foundation, Inc. 
A charitable organization dedicated to assisting families whose children are facing life-threatening illnesses.

National Children's Cancer Society
(800) 532-6459 or (314) 241-1600, is concerned with improving the quality of life for children with cancer by promoting children's health through financial and in-kind assistance, advocacy, support services, and education.

Candlelighter’s Childhood Cancer Foundation 
(800) 366-2223, is a national non-profit organization founded by parents of children with cancer. Free services provided by CCCF include a quarterly newsletter, various handbooks to help families of children with cancer, local support group chapters, and national advocacy.

National Marrow Donor Program (NMDP)
Patient advocacy: (888) 999-6743, General information: (800) 627-7692, helps people who need a life-saving marrow or blood cell transplant by connecting patients, doctors, donors and researchers to resources they need.