Myelodysplastic Syndrome (MDS)

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Resources

Aplastic Anemia & MDS International Foundation (AAMDS)
www.aamds.org
(800) 747-2820
This group advocates and provides support for people with MDS and other bone marrow diseases and their families. You can get disease and treatment information, answers to questions, and referrals to support groups and other forms of support through the foundation’s website or by calling. Read myelodysplastic syndrome (MDS) information from AAMDS.

Fred Hutchinson Cancer Research Center
www.fhcrc.org
(206) 667-5000
Fred Hutchinson Center Research Center is one of Seattle Cancer Care Alliance’s three founding organizations. It has an international reputation for its leading-edge cancer research. Read MDS information from the Hutchinson Center and watch videos from their 2012 patient conference where doctors addressed a wide range of topics, from diagnosing and treating MDS (both with and without transplants) to living with blood diseases.

Myelodysplastic Syndromes Foundation
www.mds-foundation.org
(800) MDS-0839 (637-0839)
This international group focuses on prevention, treatment, and study of MDS. The website includes a patient-information section and information on MDS research studies.

National Cancer Institute (NCI)
www.cancer.gov
Cancer Information Service: (800) 4-CANCER (422-6237)
The Federal Government’s principal agency for cancer research and training. Read MDS information and information about myelodysplastic/myeloproliferative neoplasms from NCI.

National Marrow Donor Program (NMDP)
www.marrow.org
Patient advocacy: (888) 999-6743
General information: (800) 627-7692
NMDP helps people who need a life-saving marrow or blood cell transplant by connecting patients, doctors, donors, and researchers to resources they need.