Resources
You may find the following links helpful as you research brain tumors and spinal cord cancers on the web.
Support groups and other forms of Patient Support are provided separately.
National Organizations
- American Brain Tumor Association www.abta.org Information about treatment, support, education, and research. A special section for caregivers called
- ABTA Orientation to Caregiving www.abta.org A Handbook for Family Caregivers of Patients with Brain Tumors. This resource helps caregivers understand brain tumor, what to expect, how to care for a loved one, paying for healthcare, planning for the future, and much more.
- American Cancer Society www.cancer.org Nationwide organization, provides facts about cancer and educational information.
- Brain Tumor Society www.tbts.org Non-profit organization that raises funds for brain tumor research. Provides patient education and resources.
- National Brain Tumor Foundation www.braintumor.org Non-profit organization that raises funds for brain tumor research, provides support for patients and families, and an interactive tour of the brain (www.braintumor.org/anatomy).
- National Cancer Institute www.cancer.gov Facts and figures about brain tumors, treatment, research, booklets as well as information about clinical research studies.
- National Institute of Neurological Disorders and Stroke www.ninds.nih.gov NINDS strives to reduce the burden of diseases of the brain and nervous system. It describes brain and spinal cord tumors and gives information on facts about tumors and treatments.
- Radiation Therapy Oncology Group (RTOG) www.rtog.org Nationwide group that is funded by the National Cancer Institute. Research studies are conducted to find new ways of increasing survival and improving the quality of life for patients with cancer.
University of Washington Departments
- University of Washington Department of Neurology depts.washington.edu/neurolog Faculty profiles and clinic descriptions
- University of Washington Department of Neurological Surgery depts.washington.edu/neurosur
- University of Washington Department of Radiation Oncology www.radonc.washington.edu/
Brain Tumor Information
- Education booklet for patients with brain and spinal cord tumors (pdf)
- Information for caregivers
- Mapping brain tumors
- Video on a brain tumor surgery
University of Washington Gamma Knife Center
Patient Education Materials
Clinical Research Studies Resources
- UW Division of Neuro-Oncology Research Studies (studies open for enrollment)
- University of Washington Medicine
- National Institutes for Health
- Centerwatch Clinical Trials
- Cancerguide.org
- American Society of Clinical Oncology
Patient Power Radio Interviews
- Dr. Daniel Silbergeld discusses malignant gliomas and understanding brain tumors on Patient Power.
- Dr. Marc Chamberlain discusses treatment of brain tumors on Patient Power.
- Dr. Alexander Spence discusses brain and spinal cord cancers on Patient Power.
