Web Resources

Web Resources

Below is a list of online resources you may find helpful for learning about blood disorders and the various treatments and support networks available.

Aplastic Anemia & MDS International Foundation 
The Aplastic Anemia & MDS International Foundation is an independent nonprofit organization whose mission is to support patients, families, and caregivers coping with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and related bone marrow failure diseases.

Centers for Disease Control and Prevention (CDC)
CDC works to prevent and reduce complications experienced by people with certain blood disorders. 

Cooley’s Anemia Foundation
The Cooley’s Anemia Foundation is dedicated to serving people with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley’s anemia/thalassemia major.

The Leukemia & Lymphoma Society
The mission of the Leukemia & Lymphoma Society is to cure leukemia, lymphoma, Hodgkin’s disease, and myeloma, and improve the quality of life of patients and their families.

Myelodysplastic Syndromes (MDS) Foundation
The MDS Foundation is a multidisciplinary, international organization devoted to the prevention, treatment, and study of myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases.

National Heart Lung & Blood Institute (NHLBI)
NHLBI provides global leadership for research, training, and education programs to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives. Read NHLBI information about blood disorders.

Puget Sound Blood Center (PSBC)
PSBC focuses on saving lives through research, innovation, education, and excellence in blood, medical, and laboratory services in partnership with the community. 

The Sickle Cell Cure Foundation 
The foundation is a nonprofit corporation committed to helping individuals affected by sickle cell disease.