Organizations that may help you learn about your child's disease include:
Aplastic Anemia & MDS International Foundation, Inc.
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is an independent nonprofit organization whose mission is to support patients, families, and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone marrow failure diseases.
National Marrow Donor Program
The National Marrow Donor Program® (NMDP) is a nonprofit organization dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need, when they need it. The NMDP offers several Web sites that may be helpful in your search for information.
NDMP Be the Match
Be The Match Foundation® is dedicated to raising the funds needed to help all patients get the transplant they need.